Chinese Parents with Cerebral Palsy Twin Boys

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From NetEase:

The Persevering Mom of Cerebral Palsy Twins

Living in a rental no larger than 20 square meters, working until 12 midnight every day, with twins at home suffering from cerebral palsy… this is the life of Qin Ke and her family, but she can always find reasons for her to positively face [this life]. Qin He is from Xi’an, and her husband Fe Mingfa is from Jishou of Hunan province. On the first day of the new lunar year in 2010, twins Fu Xiang and Fu Rong were born in Xi’an. 2011 March, she received the diagnosis that her two children have cerebral palsy. For her, the hundreds of thousands needed to treat [manage] cerebral palsy is an astronomical sum. It wasn’t until her twins were one year and seven months old that Qin Ke learned that if her children continue untreated, their chances of rehabilitation will be even lower. It was only then that she took her children in to gradually begin treatment and therapy. From this year on, Hunan province has increased aid for children with cerebral palsy, with the standard of financial assistance for each person being 15,600 yuan, with plans to provide 180 million yuan in total, from 2013 to 2016, to help provide free emergency treatment and therapy for 9000 children with cerebral palsy in Hunan. Photographer: Tang Jun.

[Above] The happiest time for the family is sitting together watching TV.

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Qin Ke’s job is a housekeeping staff at a hotel, with an income of around 2000 yuan [per month]. When she first started, it took her perhaps 50 minutes to an hour to clean a room. Now that she is experienced, she can basically do it in 20 minutes. However, lately, as a result of long-term bed-making and tidying movements, she has developed muscle strains in her arms.

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Early morning March 29th, Qin Ke uses her hand to massage her head after a busy day at the hotel.

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Early morning March 30th, in an alley next to Labor Square, Qin Ke is on her way home after just getting off work at the hotel. The green low building in front is her home.

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April 1st, this is the first party [group gathering] organized by the hotel that Qin Ke has participated in since Fu Xiang and Fu Rong were born.

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Dad Fu Mingfa stays at home full-time taking care of the two children. Across the street is a rehabilitation center [physical therapy?], where he has to take the brothers one by one to.

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Fu Xiang, who very rarely goes outside, is in his dad’s arms. He’s very curious about the outside world. Even a passing vehicle can make him excited/happy.

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This is the second time in half a year that they have come to the rehabilitation hospital. Dad Fu Mingfa expertly puts younger brother Fu Rong into the standing board, tying both legs with the elastic straps.

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A nurse takes out a mobile phone to play music for Fu Rong to hear. Just as the music starts, Fu Rong happily says: “xi shua shua, xi shua shua [lyrics to a song]”. It turns out that at home, Fu Mingfa also likes to use his mobile phone to play music for him, and among [the songs] is “Xi Shua Shua“.

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“Swing, swing…” little Fu Rong repeatedly says, and even the face of the normally quiet Fu Xiang lights up in a smile. The rehabilitation hospital’s nurse says that in the past, whenever the two brothers do their physical therapy, they would cry loudly, but as long as you said to them that they can go on the swing after therapy, they would obediently undergo the treatment/therapy.

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The nurse at the rehabilitation hospital with the now 4-year-old twins undergoing physical therapy.

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Because of muscle atrophy, the two brothers very rarely sit in an upright position. Only when the two brothers have slowly sat down does Qin Ke and Fu Mingfa let go. Without the feeling of protection from their dad and mom’s hands, the two brothers suddenly begin wailing.

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While little Fu Rong is still sobbing, older brother Fu Xiang has already been taken by mom to a corrective cushion where he is forcibly stretched. Qin Ke all along remembers what the doctor said: you have to be willing [to let your children suffer discomfort] during physical therapy, because when parents aren’t willing [to see their kids in discomfort], then the recovery/therapy progress for the children will be slow.

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After a day of activity/torment, [the twins] are finally defeated by fatigue and slowly enter dreamland, while dad Fu Mingfa watches TV nearby.

Comments from NetEase:

网易美国网友 ip:8.35.*.*:

A strong mother, who doesn’t complain, using her own labor to support this family.
If there are any American running dogs or Japanese bastards who see this piece of news, first curse/criticize the government then talk [about the Chinese people in general].

网易广西南宁市西乡塘区网友 ip:124.227.*.*:

Never underestimate the degree of corruption with government officials. Never underestimate the degree of ignorance among the people. Never underestimate the degree of moral degeneracy of scholars! There are too many “Four Dog Cadres” these days: like pugs with superiors, like wolf dogs with subordinates, like rabid dogs with their interests, like male dogs with females!

80后水电工程管理 [网易安徽省合肥市网友]:

Those who are discovered with this disease when born, I recommend that they be euthanized… I know a lot of people will flame me for this~~~~~~~
But let’s think realistically here. This kind of child cannot be cured. If [the condition] is minor, we can still accept/deal with that… but think, it isn’t that the parents don’t love them. The parents are willing to take care of them, but severe cerebral palsy means no ability to live independently, so when th parents die, who will come to take care of these children with cerebral palsy? Do you think society will be able to?? It’s simply impossible…
What more, families with children like this basically are burdened and held down by such children for their entire lives… who need someone to take care of them 24 hours a day…
The above is specific to rabble households [instead of rich households]~~~~~~

疯清云淡 [网易广东省揭阳市网友]:

All those public welfare organs/departments, what are they all doing?

tango6188 [网易柬埔寨网友]:

Editor, the child is still small, can you add a mosaic [to censor their faces]?

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  • Everyday heroes are out there…I salute them and wish them strength for the hard road ahead

    • whuddyasack

      Fred, I’ve read many of your comments and like everyone else’s, some are good and some are not so good. But this one is the best I’ve read.(Tips hat)

      • Markus Peg

        Their is a first for everything, I agree…

  • Kai

    Mother’s Day y’all. Don’t forget to call your mom and say you love her or something.

    • firebert5

      The above Mom certainly has earned it.

    • David

      I wish I could. Everybody please tell your mother how much you love her, All too soon you will not be ale to.

    • linette lee

      This mother can use some help from social welfare. Now she is on the news she should get some financial help from the public. Her life is too hard. Happy mother’s day to her. She has a good partner. Her husband is good.

  • The John

    “Those who are discovered with this disease when born, I recommend
    that they be euthanized… I know a lot of people will flame me for
    this~~~~~~~

    But let’s think realistically here. This kind of child cannot be cured.
    If [the condition] is minor, we can still accept/deal with that… but
    think, it isn’t that the parents don’t love them. The parents are
    willing to take care of them, but severe cerebral palsy means no ability
    to live independently, so when th parents die, who will come to take
    care of these children with cerebral palsy? Do you think society will be
    able to?? It’s simply impossible…

    What more, families with children like this basically are burdened and
    held down by such children for their entire lives… who need someone to
    take care of them 24 hours a day…

    The above is specific to rabble households [instead of rich households]~~~~~~”

    ——————————————————————————————————–

    Why do I hear this so often in China? My sister has cerebral palsy. Sure they are hard to teach and even more difficult to deal with the discrimination they will face. BUT, THEY ARE NOT USELESS!!!! My sister can work and do many useful things. It just took a lot to get to that degree. We try to fill her life with as much happiness as possible because she will face a lot of tough odds. I don’t mean work related. I mean… “Why don’t guys like me?” or “Is something wrong with me?” Mostly emotional. But, the great thing about kids with cerbral palsy is that they have this almost pure kid of love. She is easy to cheer up and has degrees of loyalty and honor that you don’t find in ANYONE “NORMAL” these days. She is a champion and gives me drive to go on. She is my hero and I promise I will give her a better good life welfare or no welfare. (Although, I must say the welfare and medical system in China is horrid/inhumane.)

    My kid could be born with no limbs and eyes… That’s my kid damn it. I am gonna love it and take care of it. I hope I’m not jinxing myself, but if I am… I don’t care. I’ll never turn my back on family.

    As for the parents in the story, they have my utmost respect because raising a child in such conditions is hard. It’s not only the welfare… It’s the jokes, laughter, strange gawking and overall ignorance of others around them that they will have to deal with as their kids grow up….

    • Kai

      I think this kind of harsh pragmatism is pretty common with anyone who doesn’t have an abundance of means to care for them. Babies with defects get abandoned a whole lot in this world, if not aborted in the womb the moment they’re discovered to be at risk of some congenital defect or something, even if it isn’t life threatening. It’s often even considered humane, to save the child from a life of disability and handicap.

      Life sucks, dude.

      • firebert5

        That, unfortunately, is very true. It’s nice to see the opposite happening for a change.

    • firebert5

      When your primary foundation for ethics is straightforward materialism, those kind of views are the result. This is exactly the kind of view that Peter Singer and his ilk promote, that utility is the only real value. Based on your example of your family, you feel there is an inherent worth beyond the material. I’m not trying to get ‘spiritual’ or anything, I’m just saying that these supposed ‘pragmatist’ arguments that are often thrown around to justify euthanizing ‘the weak’ discount anything they cannot quantify because that is the easiest way to justify their position. It’s amazing to me that those who argue for it are never the ones who might be on the receiving end. I doubt that someone like Stephen Hawking would agree with many of the statements of Peter Singer for example.

    • Alex

      I know more “normal” people that are utter useless pieces of crap. Yet, those people consider immediatly people with disabilities useless and that should be euthanized.

      It’s like forced analphabetism. Most people can read, but they don’t. So it’s basically like analphabetism. So in the same way, most people have all the human capabilities, but they make no use of any of them to do good to anyone, not even themselves.

    • Suicidal Tendencies

      Don’t get so excited, and consider the facts:
      You’ve read what this mom go through in orider for her children to get the treatment they need, and that’s even depending on the local government subsidies.
      Now, imagine another kind of severe case, but no government subsidies.

      That means no matter how hard she, he or both work, they will NEVER manage to get a treatment for their children. That could lead to a continuous short life of suffering for the chil(ren) and the parents will ruin their life in the same time.

      There is a line beyond which there’s nothing you can do. And before that, there is a line beyond which you can’t take it anymore. Some Chinese being pragmatic think it would be better if you just make the pain intense and short so that you can recover rather than just ruining everything including yourself.
      You’d be surprised how much a harsh life will make people tough and pragmatic, even if you talk about their own children.

      So cherish the conditions you have that give you and your family the opportunity to take care of your sister and always bear in mind that these are not granted. A lot of people out there will not be that lucky.

      • Rick in China

        You’re weak. Your implication is suffering = put ’em out of their misery. WAIT, I just realized your name is “Suicidal Tendencies”, haha, that’s awesome – because I was seriously about to say you’re likely the type of person who offs ’emself as soon as shit doesn’t go your way.

        Life is full of suffering. Life…IS…suffering. The majority of the people in the world are suffering, we can only be thankful for the lucky times when we are _not_. Some get less than others. Pushing through tough shit in life and learning to live with challenge is how any species manages to survive on this fight-or-die planet.

  • Blue

    FFS! An inspiring but sad story of the hardships of a family struggling with these difficulties, and all the comments are about American dogs, Japanese bastards, corrupt officials, cadres, and fucking euthanasia!!!
    Did I miss something here???
    It is a real shame that there isn’t more support for these families, but at least there is some, and hopefully that will be increasing. But I think it’s truly great to see a story where this family is doing everything it can under very difficult circumstances. We hear too much about the families who do the opposite, and dump their kids at drop-off points for unwanted children. I think this story should have been followed by a plethora of positive, supportive comments for the family, and not the crap that they’ve obviously written (commenters, not china smack)

    • Kai

      It’s pretty typical for NetEase. It’s kinda like how the comments on some articles on cS go into some irrelevant tangent about Chinese stereotypes and criticisms. The community on NetEase is like that too. You have people who interpret everything as a data point to use against some other group of people.

      For example, the first comment is someone who thinks there’s a lot of other commenters on NetEase who are too pro-US or pro-Japan. He feels these people are often criticizing or looking down upon Chinese people in general. So he sees this article as an example of how great, selfless, long-suffering, etc. this Chinese mother is and how she reflects well upon Chinese people in general, thus confounding all the negative stereotypes he thinks those pro-US, pro-Japan, overly critical/harsh commenters often make. Interestingly, it’s not like he denies there are problems in China, but he clearly feels the bulk of the blame and censure should be directed at the government instead of Chinese people overall.

      The second comment I think is a copy-paste. You get people going around copying and pasting the same comment, often dissing the government.

      The others are pretty relevant, I think. Even if this family is awesome and touching and whatever, it’s still evident that they have a hard life, and people who sympathize with them may want to find something to blame. In this case, it’s easy for people to think the government should be doing more to help families like this. Chinese comments complaining about the government doesn’t mean they aren’t positive or supportive of the family, just that they feel the government could be doing more but aren’t, and so this arguably unfortunate situation exists.

      The euthanasia comment is like when people complain about poor people having too many kids. There’s logic in it, even if others think it is unfathomable.

      Go to the source and read the other less upvoted comments. There’s a lot, and many of them are positive and supportive.

      • Blue

        Yeah, I take your point. Not many generic messages of support are going to get up-voted. I do still think it’s sad there aren’t any clear and direct messages of support here. But you’re right: I was just a bit shocked.

  • mr.wiener

    “A strong mother, who doesn’t complain, using her own labor to support this family.
    If there are any American running dogs or Japanese bastards who see this piece of news, first curse/criticize the government then talk [about the Chinese people in general].”

    “Those who are discovered with this disease when born, I recommend that they be euthanized…”

    Well I don’t know about the case for Euthanasia, but I think these 2 quotes definitely show that some people die at about 25 but don’t get buried until they are 75.

    • Dr Sun

      Ain’t that the truth

    • Sleepy

      -Benjamin Franklin (ala Reddit)

      • mr.wiener

        Fellow redditor come to my arms!

    • Barack Obama

      What makes us human is our mind, our brain and our neurons. I believe a case for euthanasia can be made for those with a certain degree of mental retardation.

      • mr.wiener

        Certainly, as an individual’s and a family’s choice. Never as a state policy.

  • x1sfg

    May they grow up to surpass Stephen Hawking.

  • lacompacida

    China is so rich now, Chinese people should have no problem handling a case like this.

    • Suicidal Tendencies

      China is rich in absolute value. Brought back to GDP per capita, China is only the 80-90th richest country in the world. If they implement generous social welfare like some western countries, they won’t stand it for long.

  • lacompacida

    “Those who are discovered with this disease when born, I recommend
    that they be euthanized… I know a lot of people will flame me for
    this~~~~~~~ Who ever said this should be euthanized, now, quickly, before he/she can do any damage.

    • Dr Sun

      you seem to desire to be flamed ??

    • NeverMind

      I am not too knowledgeable about this disease, and it is too harsh to wish this on kids. Personally, I feel that if I ever lose the ability to perform basic human actions or become a burden on my family, I would sincerely wish that I be euthanized immediately. I would never want my own family to undergo hardship because of me.

      • Dr Sun

        then I hope you have a “living will” and DNR tattooed on your forehead.

  • Freddi BuBu

    Unconditional love being shown by Chinese parents – shocking indeed…..

    • Dr Sun

      why is that shocking, if you actually lived in China you would see that every day.

      • mr.wiener

        Shhh! ….She’s a philosopher.

      • Ryo Saeba

        I wouldn’t say truly “unconditional.” Just go ask any Chinese “why should people have kids?” Their answer is usually “who will take care of you when you get old?” In other words, most people have kids here because they are afraid no one will wipe their shit when they get old.

        EDIT ADD: Your second most popular answer will be “to pass on our bloodline.” Unless you’re really rich and have some kind of inheritance to give, your bloodline is worthless. It is all up in their ego and imagination that they have done “their part” in passing on an otherwise generic bloodline that no one will give even half a fuck to.

        • Barack Obama

          “passing on our bloodline” is the real reason why we’re here. It is why we evolved into what we are. Reproduction is the only driving force for life. Or I should say, life is just a vehicle for reproduction. In other words, “Life” “began” as a good way to reproduce (chemicals can reproduce without “life”). So I don’t understand how you can have a problem with that.
          And also, WHO THE FUCK ARE YOU to say to other people that their bloodline is worthless…and just b/c they are not rich? Are you even rich, bro? Regardless, your bloodline is worthless. Go end it now and don’t have any more kids. But i guess i cannot criticize such a righteous person like you who only have kids in order to display a completely selfless act of unconditional love. Wow what a truly wonderful person you must be!

        • Dr Sun

          and thats different to westens having kids, how ????
          I’m really interested to read your response to this, are you saying folks in the west do not have children to build a family or have people that care for them ???
          They do it because they simply cannot use condoms and so desire to be “soccer parents” who want to go broke sending their narcissistic, selfish, self absorbed children through college, who will in return will never care a hoot for them ?

          • Ryo Saeba

            I think you and mr president down below missed my point. When I said “passing on the bloodline,” I meant they actually think it is their “duty” to do this. They think they are responsible to pass on their “family name.” I guess you wouldn’t know this unless you all have a Chinese background.

            I am not against having a family in any, way, shape, or form. It’s really none of my business TBH. But IMHO, when a couple decides to have a child, the child shouldn’t be born 10 feet deep in a hole and trying to dig their way out their whole life. Let’s take Africans for example. All those commercials you see on TV late in the evening talking about donating the cost of a cup of coffee. What do you usually say about that? Give them free birth control is what I hear most. Please realize that I am speaking generally and not specifically to any one person who may have a minority point of view.

            In any case, you see where I’m going here. If people ask them to not give birth because they are dirt poor, what’s the difference to some of these dirt poor Chinese people giving birth? Then if that’s not bad enough, they ask for sympathy and handouts. They’d be saying things like “I work 3 jobs and have 2 kids and no time to blah blah blah… ” First of all, they chose to have the kid(s), and if they say the husband left, well, they chose him as well!

            Factors in deciding to have a child should include a very stable relationship, because you want to have them, and you will do the best you can to give them a good and healthy life. It shouldn’t be because of “insurance” (someone to wipe your shit), or to pass on your oh-so-important family name (bloodline). That was my point.

          • Dr Sun

            I say, reconcile with and direct this towards your fellow Chavs or trailer park trash before you project this as a uniquely ” Chinese phenomenon”

    • Barack Obama

      Unconditional love shown by lower IQ, smaller-brained brown people – shocking indeed! I didn’t realize that you brown people, I mean with your lower intelligence and violent rapacious tendencies and all, can feel the same kind of love that we regular folks feel.
      (See i can dehumanize you, too. How’s that feel?)

  • Cerebral pals!

    • Surfeit

      This pun is underrated.

  • mr.wiener

    I’m not kidding, I don’t know if the two I quoted above are neo con or non-nationalist. All I know is they are dickheads.

  • commander

    The biggest worry for the caring parents is who is to take care of their kids and how after they are left alone after their deaths.

    The parents are still young and can work to get income, but it is impossible to extend their extra care for children indefinitely.

    This is where the Chinese provincial or central government should step in to offer assistance to those who are i financial troubles with disabled children.

    But in a nation that is the most populous in the world, such an entitlement for working parents is still viewed as a luxury.

    Many China watchers raise concerns that China’s growing influence accompanying its rise will destabilize the regional order in a possible confrontation with Japan, a American proxy and the United States.

    But given the enormously widening disparity of wealth between regions and Chinese public, China’s rise to regional power is a distant prospect until it addresses rampant corruption and create fair income distribution routes with well-established welfare programs.

    The parents like ones with cerebral palsy should deserve more attention than the reinforcement and modernization of the Chinese military.

  • Surfeit

    “the doctor said: you have to be willing [to let your children suffer discomfort] during physical therapy, because when parents aren’t willing [to see their kids in discomfort], then the recovery/therapy progress for the children will be slow.”

    Apply this hypothesis to all Chinese children and personal/social ills will deteriorate massively.

    • Pharenheit

      What “personal/social ills will deteriorate massively.”?
      Care to elaborate?

      • Surfeit

        I really don’t.

        • Pharenheit

          I’m so disappointed.

          • Surfeit

            Welcome to the suck.

  • Dr Sun

    If your talking about “Chavs” in the Uk or the trailer park trash in the U.S you may have a point, but as there is no welfare in China, you dont.

    Did you actually read the article ?

    • Surfeit

      Say whaaaat?!

      • Dr Sun

        whaaaat!

  • Surfeit

    Give them a smack and tell them to sit up straight.

  • Ryo Saeba

    Honestly, it’s fine by me as long as they don’t start asking for handouts or burden other people. They chose to have this kind of life. I don’t see why people need to “talk” so much about it. It sucks, yes, but bottom line, it was their choice. Nobody put a gun to their head and make them do this. Well, except for god if you’re a believer. So thanks god! You’re doing a great job!

    • PhantomFlash

      I don’t understand. It was their choice to have cerebral palsy children?

  • Ryo Saeba

    Yes, because they figured out that they don’t have to clean places that you don’t often see.

  • death_by_ivory

    It is heartbreaking to see.It is extremely hard to be a parent to a healthy child,how hard it can be for those unfortunate kids?
    I hope they will get more help in the future and be happy.

    • YourSupremeCommander

      The real sad part is that this is taking place in China. I am sure they are just one family out of a few million that’s having such agonizing problems.

  • YourSupremeCommander

    This website is getting depressing quick without the Fong Wong Dong.

  • Barack Obama

    why wouldn’t it be “right?” B/c god told you so?

  • Rick in China

    The John — this phrase has to change, “I would be willing to destroy my life for my kid”

    I get what you were trying to say, but, surely you see how illogical that statement is – destroying your life for your kid would be destroying your kid’s life, essentially. There’s no need to go off the cliff here. The point is, family is very important, and our children are our responsibility – throwing ’em away because ‘it’s tough’ shouldn’t be an option. Many do, and it’s tough for you and I to understand that, but that’s just how it is..

  • mr.wiener

    Chris. read the rest of his post, the 1st paragraph was a quote from a Chinese netezin above. He spent the remainder of his post espousing the same ideas as you.

  • SonofSpermcube

    At least they’re sons, right?

    • PhantomFlash

      wow, having cerebral palsy twins in China is hard enough, but they have to hear your jacka$$ comments too?

  • SonofSpermcube

    “Oh, by the way ‘cerebral palsy’ is not a disease. It cannot be caught.”

    It’s not an INFECTIOUS disease. It is a disease. A non-infectious one.

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